The doctor who diagnosed her gave very little information. He suggested she limit her activities in ways that caused her more harm than good. After many months, Ellen was searching the internet for a book that might help her learn more and she came across a book by Brad Tinkle, M.D. She purchased it and found it to be a wonderful resource, but something was missing. The doctor, a geneticist who specializes in connective tissue disorders, including EDS, went through all the medical aspects of EDS, but his book wasn’t written to address the struggle of what it is like to live with Ehlers-Danlos Syndrome.
That’s where the inspiration to write Zebras of Hope came in. Ellen realized there was a need for a patient centered book. It could never replace the work of Dr. Tinkle and others like him, but it doesn’t try to. Zebras of Hope takes a patient centered approach and talks about the struggle to find a diagnosis, the difficulty of accepting that diagnosis once received, and moving forward with life despite the diagnosis.
Ellen priced Zebras of Hope low to make sure that it was affordable for the many patients who are unable to afford expensive books. She also offered many free days initially, so that as many patients as needed it would be able to get their copies at no cost.
There is no cure for Ehlers-Danlos Syndrome. There is very little funding for research for EDS, but there is always hope. Ellen Kelleher finds her hope in her faith in Jesus Christ. Zebras of Hope is a reflection of her faith in Christ and her desire to live life for Him.
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